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Natalie
Natalie Noelle is 14 years old. She is such a wonderful daughter and big sister. She loves art, writing and reading. She's enjoying being on the newspaper staff at her middle school. Natalie is a wonderful example to me of being patient and kind to others.
Lily
Lily Grace is 9 yrs old and keeps us laughing with her cute comments. She loves snails, books, and games. She absolutely adores Joshua! She has several medical challenges, including PDD-NOS, which is a form of autism. She also has a very rare genetic disorder called "Cranioectodermal dysplasia" aka Sensenbrenner Syndrome. (only 16 cases world-wide) But more importantly, she is a great example of strength and perseverance. I kept a journal of her first few years @ www.caringbridge.org/tx/lily
Joshua
Joshua Ellis just turned 1 year old. He has such an adorable smile! He loves to make us laugh. He has his sisters wrapped around his little finger!
4 comments:
Love the halloween pictures. Both of them are growing up so fast. Can't wait to see ya'll in January...... Sending bunches of hugs and love to all !!!!
I love the costumes! They both look great!
Coult you will get a kick out of this... A friend of ours that is older and lost her husband over a year ago has decided to go on a mission. She got her call a couple of weeks ago. Guess where she is going....Guatemala! I think that this will be so wonderful for her!! Any advice??? I hope that all is well. BIG HUGS! I need to call you!!
Hello! My 2-year-old son has ectodermal dysplasia, and they believe it may be cranioectodermal dysplasia. We will be traveling to a geneticist to find out for sure in December. I would love to learn more about your daughter! I have not been able to find another family with ED. Have a great Thanksgiving!
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